Share your story
Your experience matters
Rare is Everywhere. 300,000 people in New Zealand have a rare disorder and their lives are diverse, inspirational and humbling.
We recognise the power of personal stories and how they bring to light the reality of living with a rare disorder.
Meet some of the Kiwis living with a rare disorder and read their stories here.
Sharing your personal story will help others going through a similar experience, and help educate the wider public about your condition.
