Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
Rare News
Rare Stories
Debbie's story
I have had CRPS for almost 10 years now. C.R.P.S or CRPS is a neurological chronic pain condition. Our injuries heal, but our brain keeps sending out constant pain signals, our central nervous system malfunctions and even our autonomic system begins to misfire. The first hurdle we often come up against is being told our injury has healed - and there is nothing wrong with us anymore. D…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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